Sometime 72 hours from now I'll be waiting....I'll be hoping. I'll be a myriad of emotions till I see him open his eyes again. The countdown has begun, like this inevitable end to what we know and into what we don't. James anxiety is merciless. Every hour, all day and night I can see the … Continue reading The countdown begins. →

I woke this morning, my head on James chest with the realization this would be the last morning I would be able to sleep in with him, pain free for a few months. This was our last Sunday funday for a while. With that I rose out of bed, ran a bath and began our … Continue reading 4 more days →

Here we are a week away and the scramble begins. Projects need to be finished, things need to be in order for the long hiatus that's ahead. We had originally planned to take this last weekend trip away, we now decided we need to stay close... just in case. So the projects at home take … Continue reading Today →

Happy Fathers day James! James is one of the best dads I have ever had the pleasure of watching raise their children for as many years as I have known them. He gives his all to his kids, everyday. Of course, teens don't realize how much we do until they have to do the whole … Continue reading A visit at work →

They say knowledge is power. I guess to an extent this could be true. Sometimes, knowledge... sucks. I now know and fully understand the saying "ignorance is bliss". For if I were to not know everything I have so adamantly needed to know about all that has to do with James' condition, I may be … Continue reading Knowledge and the unknown →

Saturday symptoms seem to remain the same as Friday, with no worsening leading us to believe this is the aneurysm pressing against the esophagus now. Well we have made it this far with no real symptoms being this was completely unknown just month ago. Of course, I was hopeful we could make it to surgery … Continue reading Er and repeat →

Another visit to the ER. Well what did I say? Ready to rush him in at ANY sign of trouble right? James has been de-sating down to about 89% oxygenation at night prompting me to force him to do breathing treatments ( which he hates because it makes his heart race) figuring out thru trial … Continue reading And another one…. →

Along with James and my planning, we have many projects going now. On top of our projects we need to get things in order for the recovery time. I decided with Father’s Day approaching I’d make the best of it and ordered James a recliner. This isn’t just a plain old boring recliner, no. I … Continue reading Days get shorter →

It's a funny thing, knowledge. In this sorta situation it can be frustrating, infuriating and well, just plain sucks. James is put on life restrictions. No lifting over 10lbs, no straining, no riding horses (mostly no falling off or bouncing with them) no, no,no!!! James life has reverted back to childhood and for a strong … Continue reading On high alert! →